Sunday, September 30, 2012

Tips

Okay, so before we get to Cohen's words today...here are a few tips I have learned along the way:

+ Don't blame yourself. 
Never for one second think that your child's needing of a helmet was because you failed in any sort of way. You are in fact being a better parent by helping your child. It is just like a parent giving their child braces so that they can have a straighter smile. Be grateful there is technology like this to help shape your little one's head along. 
+ Be positive.
Babies can sense whether you are happy, sad or mad. So remember to be extra positive when you are attending your baby's helmet appointments and from then on while your little one is wearing the helmet. If you are hesitant or negative about it or the situation revolving around the helmet, your little fellow will associate that with the helmet itself. So put on your happy face and let him (or her) know everything is going to be okay!
+Be open to others.
In doing so, it allows for so much more positive growth  for you, your family, and those around you. Which gives room for you to receive a lot more--much needed--comfort. As I have been open about this (and believe me I will be the first to say I was A-Okay with staying put in our basement apartment for the 10 weeks or so until the helmet was off just to avoid all the stares, judgements and whatever else I thought would come with it), I have actually received so much positive feedback, love, admiration, inspiration, and comfort.
+Invest in a squirt bottle and some rubbing alcohol.
When your baby gets up to wearing that helmet 23/7, be prepared, it's gonna get stinky. So take a trip to Walmart: go to the travel section and buy a little squirt bottle. Then fill it with some rubbing alcohol and be sure to clean that helmet EVERY day. We have a nice routine (from before we even got the helmet) where we give Cohen a bath every night at about 6:30 (of course unless we are out at an activity, function, etc.) to start getting him ready for beddy-by-time. Thus, for us, we take his helmet off at 6pm. Then we usually take him for a quick walk to let him air out (if the whether permits), just before 6:30 we feed him his solids, after that Steven will usually bathe him while I clean the helmet. I like to squirt the inside with the alcohol and rub it in real good with a clean wash cloth. Then I use another wash cloth dampened with water to get the outside cleaned up. Oh and I like to squirt and wipe off the velcro strap (as ours tends to get stinky...). Once the helmet smells nice and clean, I set it upside down (as we were instructed by our doctor to allow better ventilation while drying) in front of a fan. I just like to do that because I feel like it helps it dry faster and air out better. In the meantime, Steven finishes bathing Cohen, lotions him up (except for his head so that the extra oils don't get in the helmet), puts on his jammies, reads him a book or two then gives him his bottle. We find it is easiest to put his helmet on when he is all ready for bed and fed because then he is clean (obviously) and in a sleepy state. We position the helmet on and nighty night he goes. It sounds like a process, but honestly it takes about 30mins total. And yes, it is much easier with the two of us. 
   
+Beware of heat rash.
Really just be cautious and aware of your little feller's head during that brief hour that it is off. Our doc told us that yes there will be the few red pressure spots (and he pointed out where those would be so we knew what to expect/look for), but those will go away within the hour the helmet is off. If they don't, do not just ignore them or else they may turn into sores. And then you have to wait until the sores heal up before you can continue use of the helmet. So it is just easier to check out your baby's head each night (and make sure their head is completely dry before putting the helmet back on) to try and avoid sores. For us, though, sores have not been the problem. It has been heat rash. Luckily it has only occurred twice, and with the use of hydrocortisone, it has cleared up in a day. But if we ignored the redness (which for us the heat rash was kind of just a red splotch all over his head), it could have gotten a lot worse. So in a nutshell, expect the red pressure spots to clear up within the hour it is off. If they don't, consult your doctor and use your best judgement as to whether or not you put the helmet back on until you are able to see your doctor.
+Keep the temperature cooler.
This goes hand in hand with being aware of heat rash. Because the helmet doesn't breathe much, it locks in all the heat that normally escapes from your baby's head. Yes, your baby's body will eventually adapt to wearing the helmet, but you need to help in the process by making sure they don't overheat (and thus develop that heat rash). Luckily for us we have AC and live in a basement...oh and Fall is coming up so hopefully it cools off soon. Even so, I find that Cohen's body temp is best regulated when he is in either a onesie or shorts and a T-shirt. As for nighttime, we still put him in his normal jammies, but we do not put him in his sleep sack anymore. Instead, we give him his little blankie (and two stuffed animals--Bear-Bear and Mr. Elephant) to snuggle with. But don't let this issue of keeping your baby cool limit you from going out on occasions.
+Get out of the house.
If you don't, you AND your baby will go crazy. Use common sense though and don't go strollering around in the blazing sun or sit in the park (even if it's in the shade, because it still is enough to get your baby heated). Instead, go visit a friend or go to the store or go for your walk in the mall. Try to go to places that are cooler. If all else fails, and you just want to take your walk outside, go either in the morning or evening before or after it heats up.
  
+Be happy the helmet is an extra cushion and protection against the falls.
As Cohen is crawling all over the place and pulling himself up to standing anywhere he can now, that means there are a lot more falls and bumping into things. Thus, it is nice not to have to worry about any bumps or bruises happening (at least on the head) as the helmet gives him good protection. *Fingers crossed, but I hope he learns to walk while wearing this thing for that very reason!* However, something to be aware of (for me too), I was talking to another family today that my husband and I met at the park while we were pushing Cohen in the swing. Turns out their little boy--who is now a year and a half old--had a helmet for five months when he was about Cohen's age. And this mother was saying that when he finally was done with his helmet, he continued to bump into things as he did while wearing the helmet. But when he had the helmet on, he wasn't really aware that he was actually bumping his head and it would normally hurt. SO when he started moving 
all around--as babies do--without his helmet, he had to get use to not having the helmet there to cushion his falls.
Anyway, I thought it was just something to think about and kind of expect for
when the helmet is OFF.

Well, I am sure there are various other things I am forgetting to mention, and maybe your experience is very different than mine. So just take my two cents like a grain of salt and use your own best "motherly intuition". In the end, that is all we really can go off of anyway. We do what we mothers do, and we strive to do it the best way we know how.  I like to think mothers are angel's hands doing the heavenly work of God. His children are His most precious gifts, and they are ours to love, nurture and raise. 

Tuesday, September 25, 2012

Caught in the Rain

Oh mommy and daddy. What were you thinking?
Well it was fun nonetheless.

...It was about 6 one evening and I was being fussy
It has been too hot to go out for walks during the day
So mom and dad decided to take me out for a walk that evening when they took my helmet off so I could air out

We walked past the park...
across a busy street (where a policeman DIDN'T even stop for us at the cross walk!)...
and to the grocery store to get some ice cream....

It wasn't until we were on our walk back when 
ALL OF THE SUDDEN
it began to rain!
And rain is quite an understatement here, 
it DOWN POURED

And I was merely in some shorts and a T-shirt! 
At first it felt refreshing, but then it didn't stop. 
I didn't know what to think. 
"I am not in a pool, nor my bathtub. SO what is going on?!" I thought.

Then mom and dad stopped the stroller, 
and as they were unbuckling me they noticed my chin was 
QUIVERING!
They felt terribly bad.
Mom quickly pulled me into her arms...that wasn't enough.
So under her shirt I went!
Rain ever coming down on us!!!

I didn't cry
I just curled into a little ball and hugged my mommy.
And down the street we ran

Dad pushing the stroller that carried not a baby, but ice cream! 
Mom running ever so carefully behind, carrying me under her shirt!
I am sure we must have looked quite funny.

3 blocks till home...

We bypassed that busy crosswalk...we didn't have time to wait for people to stop for us.
(Besides, why are they going to stop when the policeman DIDN'T?!!!)
We then came to the stoplight on our street. 

2 blocks to go...

The little walking light was just about to turn, signaling it okay for us to cross,
when a very kind man in a minivan in the right hand turn lane noticed out predicament.
He honked his horn, rolled down his window and through the rain he called out, 
"That baby must be freezing, do you need a ride?"

We got in, he blasted the heat and gave Cohen a little blanket. 
In the car was his sweet little daughter with gorgeous long hair and her grandma. 
The man said he had seen us scurrying along, then the rain came.
He knew he had to help, or at least offer. 

The world is not all bad. 
There ARE still very kind-hearted people out there willing to lend a helping hand.

This is Cohen, 
  Keepin it round all 'round the town.

Living in an Icebox

Hi Family and Friends,
What's new you may be wondering? 
Well I'll tell you one thing, this helmet sure keeps the heat in
Mom and dad have been dressing me very lightly
...I mean sometimes not even a onesie...
to try and keep my body temperature from rising. 
Thank goodness Fall is here!

Even so, they have the AC on 24/7 and a fan blowing in my room. 
(Mommy says the house is like an ice box! But...
she can just put some socks on! 
I need it like this so I don't overheat.)

It is just crazy how insulated this helmet is.
I mean even with the cool house, 
I still can't sleep in my sleep sack anymore. 
But it's ok for me, because my helmet keeps me plenty toasty--
almost too toasty. 

Two times now I have gotten heat rash on my head. 
Thankfully mommy and daddy are 
very aware
 and when they notice the rash, they take my helmet off and put some hydrocortosone on it 
until it is all better. 
(Which usually takes about a day.)

So sometimes it is like two steps forward and one step back. But at least we are continually making progress.

That is it...for now. 

This is Cohen, 
  Keepin it round all 'round the town.

Monday, September 17, 2012

Go Cougs!

Alright, my helmet is lookin' awesome
 thanks to my Auntie Kayla and mommy!!
And Auntie Lyssie, daddy, Kyson and Kenty, too.

I know my Cougs lost this last Saturday, but let's get real...
it probably was because I didn't have my sweet helmet on to support them! 
Rest assured though, I will be at every home game from here on out 
(even if they are past my 7 o'clock bedtime)!!! 

Can't wait to hit up the soccer games and volleyball games, too! 

!GO COUGARS!

 Auntie Kaya and mommy hard at work...
...they had lots of fun doin it, too!
Almost done!!
Finishing touches...
I am one happy, patient boy! Can't wait for them to put on my sweet new BYU helmet, I was tired of the white egg-ish shell.
IT'S DONE! Major Thanks Auntie Kayla!!!!!!!!!!!!!!!
 JUST SPORTIN' THE NEW AND IMPROVED HELMET AT FAMILY SUNDAY DINNER
 I MIGHT BE A COUGAR...
BUT I'LL ALWAYS KNOW HOW TO FLY LIKE AN EAGLE AT HEART!
This is Cohen, 
  Keepin it round all 'round the town.

Wednesday, September 12, 2012

New Tricks

Hi guys,
Here is the news: mommy and daddy are quite proud of me...last night was my first night sleeping WITH my helmet on. I didn't really notice it; if anything it kept me warmer! Plus, I kinda like sleeping on a round head ;) So last night was a good night...

 Night night my lil Cobear. XOXO
Cohen sleeping like a champ! 
(He is such a snuggler when he sleeps. He loves his little Bear-Bear. So precious). 
...and we all woke up happy! =D
OK so back to me...I'm lovin this helmet as I have discovered I can do a few new tricks!
Aside from sleeping through the night last night with my helmet, when I woke up from my naps today...I didn't just sit there and play with my little friends Mr. Elephant and Bear-Bear. Nope, not today. Today when I woke up I decided I would wait for mommy by STANDING! Boy did she think that was awesome and cute.
Check it out:

I love that his eyes just barely peer over the top of the railing and his cute lil hands holding on!
Yeah...I'm pretty cute. Really I just do things like this for mommy's and daddy's reaction.
They are so silly.

Something I really love doing now is after I eat my second lunch, I am usually a mess. So mommy lets me splash around in a big bowl of water on the kitchen floor. Mommy is so fun. I use the big measuring cup and she likes to use the small measuring cup. In the end, I just end up dumping the whole big bowl of water. It's a good time. =P

(Side Note: This picture is actually from yesterday during the hour break after he had worn the helmet for 8 hours. I thought Cohen would like to splash around and cool off. Today--as he wore it ALL day, except for while he bathes--he still did this little activity but with his helmet on...we were just cautious not to get his helmet wet. Hence the reason I could not get a picture from today's splash time. I needed BOTH hands holding down the bowl so he wouldn't dump it on his head. Literally. That little trickster.)
After wearing my helmet ALL day, they finally took it off me for bath time. Yes that felt so good. Before I got in the bubble bath, however, they took me outside so I could feel the wind in my hair because they know that is my fav-fav. Check out my rockin helmet hair!
Anyway, my once majorly STINKY head and helmet are all clean now.
The helmet is back on for another 23 hours and off to bed I go.
Love you all!
Night night.
--The Cobear.

P.S. OH and I really like going out with mommy because I get extra attention and who doesn't want that! ;)

This is Cohen, 
  Keepin it round all 'round the town.

Monday, September 10, 2012

DAY 1: "Hey, This Shell Ain't Too Bad."

(At this point, I would like to turn my pen over to none other than Cohen himself. From now on, this color of writing will infer that I am speaking. All other colors shall be Cohen's words.)

Hi guys, 
Today mommy and daddy decided they needed to put this white hard thing--that they call my helmet--on my head. I don't exactly know what it is for...I mean, I am already so dang cute...but I like it because I can bump into almost whatever I want and I don't even notice or fall and it doesn't even phase me. For this reason, I ESPECIALLY like it when my cousin Kyson comes around...because I haven't quite learned how to hold my own around him...yet! So, this helmet comes in quite handy, or should I say "Heady!"
Anyway, here is what I have been up to lately while wearing this thing:

 Moments before getting my helmet...with mommy.
 Dad there to give me some noggin...too bad I'll win every time now with this sweet thing on!
Just HANGIN out with mom.
 
 Helping mommy with the laundry...
 I love playing WITH cousin Kyson now.
Chillin at the park together during one of my "hour off" times. 
(On day 1,I wore the helmet for an hour, then off for an hour then back on for an hour and so forth. But only when I was awake. Thankfully they didn't make me nap or sleep in it yet...I think that is coming up though on like day 3 or something.) 
P.S. Please excuse the egg-ish look of the helmet...mom says the BYU COUGAR stickers are on their way! I think her and Auntie Kayla are going to make them this Sunday. Sheesh, I can't wait. I'd much rather sport the Cougs than a cracked egg shell. Come on guys! :)

This is Cohen, 
  Keepin it round all 'round the town.

Moving Forward

After leaving that shocking & devastating appointment
--it was hard--
but I had to remind myself that I was
so thankful
that we were dealing with a relatively “minor” issue as far as medical issues can go; 
and that Cohen is a healthy, happy little guy…
he just has a small flat!

Steven was a lot more ready to start the process,
but I wasn’t at that same place....
However, after A LOT of prayer, supportive family, physical measurements taken, and some time,
I have come to realize that this is the
ONLY time we will be able to do anything to help him;
and I can’t let this time go without trying....

What I also realized in this time of preparing for his helmet
was that many people have SO many questions regarding cranial helmets,
and that it was up to us to help educate everyone as much as possible
so we would have a good support network as we go through this journey together.

That is why I felt the need to create this "informational" blog post--
to help explain what everything means, to share the experience, and to ask for prayers and support as we embark upon this journey.

To begin, "Plagiocephaly" refers to the flattening or deformation of an infant's head and is treated by cranial remolding orthoses. Occurring in approximately one in every ten infants, the incidence of plagiocephaly has been on the rise, increasing by 600% since 1992 when the American Academy of Pediatrics started its "Back to Sleep" program which encourages parents to position infants on their backs while sleeping. The successful program reduced the risk of Sudden Infant Death Syndrome (SIDS) by nearly 40%, but also resulted in the climbing incidence of deformational plagiocephaly.

"Brachycephaly" is often caused by sleeping on the back, which causes the back of the head to flatten uniformly, causing a wider and shorter shape. Increased head height is also common.

There are different types of plagiocephaly, Cohen's is categorized as “mild” brachycephaly (according to his specialist). Therefore, because he has a mild case, it should be a rather quick process (meaning only, and thankfully, one helmet rather than the typical 5-7 rounds of orthoses)--with the use of an external source (a helmet)--to correct the problem. Even though he doesn’t have the severity that some babies might exhibit, he does have a flat spot on the back right of his head and a slight bump on the front right of his forehead. This bump is due to the fact that the back right side of his head is being pushed forward ever so slightly. Thus, the helmet would apply pressure on the front right and back left of Cohen's head to hold the growth of those areas while the front left and back right are then able to essentially "catch up".

This site: http://www.hanger.com/orthotics/services/plagiocephaly/Pages/default.aspx
contains further information/pictures about/of plagiocephaly and all of its forms. It is also the clinic in which Cohen will receive his helmet from and have his future brachycephaly appointments.

Cohen's Brachycephaly Journey

Cohen was diagnosed with a "mild" case of Brachycephaly
when he was 6 1/2 months old.
It is something that we have been monitoring since he was about two months old, hoping that over time his head would round out on its own.
Our Dr in Rexburg told us
"not to worry"
and to "continue to do lots of tummy time"
(and I assure you we WERE, and NOW he is crawling all over
and sleeps like a torpedo in his crib--so the pressure is never constantly on one spot of his head anymore).

Well, upon moving to Provo, our new Dr recommended we visit the Hanger Clinic and see a specialist.

Thus we did.

Although by this time, Cohen's head had gotten a lot better.
But, there still is a minor flat spot on the back right of his head.
Nothing too severe; 

enough, however, to cause chronic ear infections, vision problems and/or TMJ in the future
if left untreated.
Thus, this is far more than merely a cosmetic fix.

When the Dr measured the
diagonals of Cohen's head,
they were off by
11mm
(he said anything above 12mm is considered severe and they would like the diagonals to be under 3mm).
Now I know that 11mm doesn't sound like much,
but when you are talking about the apex of a
3-dimensional figure,
11mm makes a huge difference.

As such--with this news and with much prayer and consideration--we decided to
go forward with the helmet.

This is the story of our journey...

Take a Deep Breath

Who ever said school is tough,
work is tiring and
jobs are stressful...
to you I say
TRY BEING A MOTHER.

It is a never-ending combination of the above.
Because when all is said and done,
finals end,
work passes by and
jobs...well at least you get paid
and it is usually a Mon-Fri thing.
But being a mom is a
forever role
(Monday through Sunday everyday all day, week after week, month after month, year after year...forever).

Yes it brings great joy and happiness,
yes there are times when my heart is 100% completely full;
but, I find that as a new mom I am constantly worrying.
Is he eating enough, sleeping enough, playing enough, developing on track?

Is he happy, does he know how much we love him, am I meeting ALL of his needs....
physically, mentally, emotionally, spiritually?
Frankly, AM I doing this right?

It may sound silly that I fret about these things when even I know the answer to each of these worries is a solid 

YES.

But it just takes one minor set back to make you begin to question yourself.
...
Brachycephaly is my setback today and for the next 8 weeks (THANKFULLY no longer than that), & it is mine to conquer.

While the name seems quite daunting,
and cases of it can be far more severe than what we are facing,
it still is enough to worry this mother's heart.

It pains me to see my helpless little 7month old in a cranial helmet;
I have to constantly remind myself that it is for the best.

And so with
faith
we move forward.
Faith
that our doctor knows what he is doing, and
faith
that the Lord will be with us and comfort us
during this time in our family's life.